Perception of Emotion in Self and Others: 005 (Advances in the Study of Communication and Affect)
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Participants underwent a semi-structured interview.
Interviews were audio-recorded and transcribed. Directed content analysis deductive and inductive was used to identify and code self-reported self-management strategies and categorise them into self-management types. Impact on practice or Results: CCSs reported specific self-management strategies which were categorised into 20 self-management strategy types. All CCSs used several self-management strategy types median 13; range 6—18 and specific self-management strategies median 35, range 13— These findings can inform the development of supported self-management interventions for CCSs in follow-up care.
The program is a combination of the best existing evidence in the field.
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We aimed to assess 1 feasibility and 2 pre-post-follow-up changes associated with this program. Methodology or Methods: Two studies were conducted. Secondly, 20 parents couples were invited to complete the 6-sessions program 4 individual problem-solving training sessions and 2 couple sessions in dyadic coping , starting four weeks after cancer diagnosis.
We collected social validity assessments on the program Kazdin scale. Thematic content analysis, Cohen's d and non-parametric tests were performed on qualitative and quantitative data respectively. Impact on practice or Results: The program was redesigned according to improvement suggestions collected in the first study e. Discussion or Conclusions: This study demonstrated that the program was feasible and well accepted.
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We observed encouraging preliminary results that need to be confirmed in larger-scale trials. This study's results aim to provide clinicians with a program that has potential to prepare parents for their child's cancer treatment by allowing them to better control the situation. Methodology or Methods: Methods: This pilot study will seek to recruit 30 newly diagnosed children 4—14 years old , for two phases I, II.
Phase I in-hospital: Two arms compared over 30 days. Assessments conducted at 3 time points baseline, day 31, day Statistical analysis. Impact on practice or Results: Project underway.
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Discussion or Conclusions: Conclusions and clinical implications: This is the first study of this type of intervention in Uruguay. The study will add evidence for the feasibility of HT and EP as adjuvant therapies during treatment. A subsequent multi-center study will aim to include all diagnoses as a way to incorporate EP and HT as part of standard care in pediatric oncology in Uruguay. We examined early trajectories of psychosocial risk in families with children newly diagnosed with cancer using the Psychosocial Assessment Tool PAT, Universal, Targeted, Clinical risk levels.
Methodology or Methods: Families were randomly allocated to an intervention IG, PAT summary profile provided to patient treating team or control group CG, no summary provided in two pediatric cancer centers. McNemar-Bowker and Chi-square tests were used for analyses. Discussion or Conclusions: While psychosocial risk remained relatively consistent for the majority of families, a substantial number of families within Universal or Targeted risk levels at T1 are likely to change risk level overtime.
This information supports periodical routine assessment, which may be critical for re-allocating psychosocial intervention resources. A specific objective was to better understand barriers and facilitators of physical activity. Methodology or Methods: This study was completed using qualitative methods.
Data were collected via semi-structured interview with parents of children who were in their first year of treatment, including hematopoietic stem cell transplantation. Data were analysed using thematic analysis. Impact on practice or Results: Twenty parents were interviewed 17 mothers, 3 fathers; with children aged 4—17, with a variety of cancer diagnoses. A framework was developed to represent how cancer diagnosis and subsequent treatment can negatively affect a child's physical activity. Parents described the cancer itself, adverse treatment side effects and the treatment environment as contributing factors to inactivity.
Parents communicated these effects went beyond physical function, describing that children experience a loss of independence, isolation and reduced motivation that adversely impacts their global well-being. Parents described an inability of children and themselves to overcome the barriers to physical activity without support from their oncology team.
Discussion or Conclusions: The reasons for reduced physical activity levels in children with cancer in the acute treatment setting are complex. Reasons include child factors, the treatment environment, and oncology team culture. These data can be used to inform development of interventions that address physical inactivity in children with cancer.
Neural Correlates of Risk Perception during Real-Life Risk Communication
Young people's care falls between paediatric, adult and specialist settings, leaving age-related care needs not well understood. Previous research highlights diverse preferences with no universal agreement on optimal age-appropriate care. Methodology or Methods: This doctoral study explored the experiences of fourteen young people diagnosed in their teenage and young adult years 16—24 years , receiving treatment in adult settings.
A series of three interviews were conducted over 12—18 months using participatory mapping to explore identity, illness, relationship and care narratives. Two interviews were undertaken with young people's identified caregivers all parents , and single interviews with fifteen multidisciplinary professionals. Impact on practice or Results: Young people's experience of cancer is confirmed as an evolving process with common transitions and unique turning points.
Methodology or Methods: Methods. The survey consisted of questions on demographics, barriers, facilitators, and attitudes toward PA. Descriptive statistics were used to analyze socio demographics and clinical characteristics. A comparison among the groups patient vs siblings, BMI, diagnosis, etc.
Among 29 activities mentioned, The most important motivating factor was support from friends Contrary to adults with cancer, physician advice was relatively unimportant to this population. Discussion or Conclusions: Conclusions: PA participation in this population is affected by a unique set of barriers and facilitators. PA programs that improve self-confidence and offer a safe environment to acquire healthy PA behaviors are needed. Further improvements to the PEER program include more effective promotion, reconsideration of PA venue selections, offering more preferred activities, and introducing friend support.
Alina Khain , Tatyana Ryabova. The aim of the research was to describe the maternal distress characteristics and it's associations with coping strategies prior and during the HSCT in Russian sample. Impact on practice or Results: Results The results demonstrated that the distress of mothers before and during HSCT was at the level from moderate to high T0: 6. Discussion or Conclusions: Conclusions The detected level of maternal distress confirms their need for additional psychological support.
Methodology or Methods: Children age 2—18 years receiving cancer therapy were included. Significantly higher percentage of girls reported symptoms across all 15Qs compared to boys, yet with lesser distress intensity P 0. Discussion or Conclusions: Children with cancer reported multiple symptoms with significant distress. Proactively screening and addressing therapy related symptoms is recommended to help improve patient tolerance to therapy and QoL.
As pediatric cancers are already rare, concerns about access are exacerbated by increasing specialization. Children's access to innovative cancer therapy may be hindered by systematic and socio-cultural factors.
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The ACCE study Access to therapeutic innovation for Children and adolescent with Cancer across Europe has begun investigating this issue in the French setting, but it has not been investigated in the Nordic region, where Copenhagen's Rigshospitalet is the main childhood cancer trial center. Interviews address themes of care trajectory and socio-cultural dimensions of the trial experience. Observational research takes place in the trial unit.
A thematic analysis will be conducted. Data collection takes place between March - August Impact on practice or Results: The results will provide important knowledge on access to innovative medicines for children with advanced cancer in the Nordic countries and in Europe when analyzed with the French ACCE data. Discussion or Conclusions: Findings will empower stakeholders to improve access to innovative therapy for children with cancer.
Mona L. Peikert 1 , Laura Inhestern 1 , Konstantin A. Only little is known about the reintegration of parents of childhood cancer survivors into daily life after the end of treatment. This study investigates cancer-related changes and the reintegration into daily family life and partner relationship during intensive cancer treatment and thereafter. The transcripts were analyzed using qualitative content analysis.
Impact on practice or Results: During treatment, parents struggled with the difficulties of every-day life e. Couples got little time with each other and some reported dispute and burden. But over the long term, being faced with the child's disease also led to strengthened relationships, improved communication, increased mutual trust and greater appreciation of daily family life.
Support by the extended family, strong relationship prior to diagnosis and use of psychosocial services had a positive impact. Even though some family relationships remained strained, most families had adapted well at the time of the interview. Discussion or Conclusions: Parents described various positive and negative changes in their family life and partner relationship. In some families, relationship and family strain remained high after the end of treatment.
Specifically, some families lacked the energy required to carry on as they did before the diagnosis. Psychosocial services supporting parents with the re-entry into daily life could address specific problems of this population. In order to support the timing of psychosocial support and physical activity promotion among children with cancer, it is important to estimate the level of fatigue at different stages of treatment.